%0 Journal Article %J Nurs Inq %D 2012 %T Finding middle ground: negotiating university and tribal community interests in community-based participatory research. %A Mohammed, Selina A %A Walters, Karina L %A LaMarr, June %A Evans-Campbell, Teresa %A Fryberg, Sheryl %K Clinical Protocols %K Community Health Services %K Community-Based Participatory Research %K Cooperative Behavior %K Focus Groups %K Humans %K Indians, North American %K Negotiating %K Northwestern United States %K Qualitative Research %K United States %K Universities %X

Community-based participatory research (CBPR) has been hailed as an alternative approach to one-sided research endeavors that have traditionally been conducted on communities as opposed to with them. Although CBPR engenders numerous relationship strengths, through its emphasis on co-sharing, mutual benefit, and community capacity building, it is often challenging as well. In this article, we describe some of the challenges of implementing CBPR in a research project designed to prevent cardiovascular disease among an indigenous community in the Pacific Northwest of the United States and how we addressed them. Specifically, we highlight the process of collaboratively constructing a Research Protocol/Data Sharing Agreement and qualitative interview guide that addressed the concerns of both university and tribal community constituents. Establishing these two items was a process of negotiation that required: (i) balancing of individual, occupational, research, and community interests; (ii) definition of terminology (e.g., ownership of data); and (iii) extensive consideration of how to best protect research participants. Finding middle ground in CBPR requires research partners to examine and articulate their own assumptions and expectations, and nurture a relationship based on compromise to effectively meet the needs of each group.

%B Nurs Inq %V 19 %P 116-27 %8 2012 Jun %G eng %N 2 %R 10.1111/j.1440-1800.2011.00557.x %0 Journal Article %J Am J Drug Alcohol Abuse %D 2012 %T Indian boarding school experience, substance use, and mental health among urban two-spirit American Indian/Alaska natives. %A Evans-Campbell, Teresa %A Walters, Karina L %A Pearson, Cynthia R %A Campbell, Christopher D %K Acculturation %K Adult %K Alaska %K Alcohol-Related Disorders %K Anxiety Disorders %K Cross-Sectional Studies %K Female %K Health Surveys %K Humans %K Indians, North American %K Inuits %K Male %K Mental Disorders %K Middle Aged %K Schools %K Stress Disorders, Post-Traumatic %K Substance-Related Disorders %K Suicidal Ideation %K Suicide, Attempted %K United States %K Urban Population %X

BACKGROUND: Systematic efforts of assimilation removed many Native children from their tribal communities and placed in non-Indian-run residential schools.

OBJECTIVES: To explore substance use and mental health concerns among a community-based sample of 447 urban two-spirit American Indian/Alaska Native adults who had attended boarding school as children and/or who were raised by someone who attended boarding school.

METHOD: Eighty-two respondents who had attended Indian boarding school as children were compared to respondents with no history of boarding school with respect to mental health and substance use.

RESULTS: Former boarding school attendees reported higher rates of current illicit drug use and living with alcohol use disorder, and were significantly more likely to have attempted suicide and experienced suicidal thoughts in their lifetime compared to non-attendees. About 39% of the sample had been raised by someone who attended boarding school. People raised by boarding school attendees were significantly more likely to have a general anxiety disorder, experience posttraumatic stress disorder symptoms, and have suicidal thoughts in their lifetime compared to others.

%B Am J Drug Alcohol Abuse %V 38 %P 421-7 %8 2012 Sep %G eng %N 5 %R 10.3109/00952990.2012.701358 %0 Journal Article %J J Prim Prev %D 2012 %T Project həli?dx(w)/Healthy Hearts Across Generations: development and evaluation design of a tribally based cardiovascular disease prevention intervention for American Indian families. %A Walters, Karina L %A LaMarr, June %A Levy, Rona L %A Pearson, Cynthia %A Maresca, Teresa %A Mohammed, Selina A %A Simoni, Jane M %A Evans-Campbell, Teresa %A Fredriksen-Goldsen, Karen %A Fryberg, Sheryl %A Jobe, Jared B %K Adolescent %K Adult %K Body Mass Index %K Cardiovascular Diseases %K Community-Based Participatory Research %K Community-Institutional Relations %K Cultural Competency %K Family Relations %K Humans %K Indians, North American %K Inuits %K Life Style %K Male %K Motivational Interviewing %K Northwestern United States %K Parents %K Risk Factors %K Young Adult %X

American Indian and Alaska Native (AIAN) populations are disproportionately at risk for cardiovascular disease (CVD), diabetes, and obesity, compared with the general US population. This article describes the həli?dx(w)/Healthy Hearts Across Generations project, an AIAN-run, tribally based randomized controlled trial (January 2010-June 2012) designed to evaluate a culturally appropriate CVD risk prevention program for AI parents residing in the Pacific Northwest of the United States. At-risk AIAN adults (n = 135) were randomly assigned to either a CVD prevention intervention arm or a comparison arm focusing on increasing family cohesiveness, communication, and connectedness. Both year-long conditions included 1 month of motivational interviewing counseling followed by personal coach contacts and family life-skills classes. Blood chemistry, blood pressure, body mass index, food intake, and physical activity were measured at baseline and at 4- and 12-month follow-up times.

%B J Prim Prev %V 33 %P 197-207 %8 2012 Aug %G eng %N 4 %R 10.1007/s10935-012-0274-z